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Patient Update: Mighty Mikey Sexton

Patient Update: Mikey Sexton – August 22, 2018

Mikey met with his pediatric CML specialist a few weeks ago and he is doing great! The tyrosine kinase inhibitors (his TKI medication) are working and his chronic myeloid leukemia levels are very low. He starts school next month and his family is very happy.

We are happy also. Way to go Mikey!


Mighty Mikey Sexton – May 16, 2018

Did you know that an orange ribbon promotes leukemia awareness and shows support for leukemia survivors and their family and friends?  Orange also happens to be Mikey Sexton’s favorite color. It’s a strange coincidence because seven year old Mikey was just recently diagnosed with CML (chronic myeloid leukemia) and is in need of a bone marrow transplant.

CML is a rare form of blood cancer that typically affects older adults, so it is rarer still to be diagnosed with CML as a young child.  It begins in the blood forming cells of the bone marrow, and eventually spreads to the blood. CML is a fairly slow growing leukemia, but it can also change into a fast-growing acute leukemia that is hard to treat.

Mikey’s Mom & Dad

Mikey’s father, Mike Sexton, who is a corrections officer and volunteer fireman says, “he was really tired, kind of pale, and not really acting like himself.”  After his diagnosis, and a week at the hospital, Mikey spent 2 weeks at home taking oral chemotherapy drugs.

Mikey and his brother

His doctors believe that a bone marrow transplant will be his only hope for a cure.  Mikey’s younger brother was tested, but he is only a 50% match.

This is where the Icla da Silva Foundation steps in.  Patients like Mikey, who need a transplant, rely on us to help them find a matching bone marrow donor.  We have begun working with Mikey’s family to schedule marrow drives, asking people to join the Be The Match bone marrow registry.  You can join the registry by by attending one of our drives, or you can join online, providing basic contact information and some medical history.  Be The Match sends out a swab kit, with simple directions to capture your HLA type, and you will be entered in the registry with the hopes of matching a patient in need of a marrow transplant.

There are more than 14,000 patients with various forms of blood cancer who can be saved if they are able to find a matching donor.  The online process to join the registry takes 8 minutes. If you match a patient and agree to become a donor, the gratitude and understanding that you saved a life lasts a lifetime.

You can join the registry in honor of Mikey right here, you may be his match.joIN the registry

Another way that you can help is by spreading the word about Mikey’s story.  You can share this story by using the links below, and ask your friends to consider joining the registry.  If you have access to a larger group of people – through an employer, a club, a school or a church organization, you can host a drive in honor of a patient.  We do most of the work, you simply have to fill out the request form here  and make the introduction.

You can also help the family directly by making a donation to their personal gofundme page.

Mikey was deemed healthy enough to go back to school, and he couldn’t be happier.  This video from his hometown Spectrum News, shows the overwhelming support received at his elementary school.

Warm Welcome to Classmate Battling Leukemia from Spectrum News

http://http://spectrumlocalnews.com/nys/capital-region/news/2018/04/09/fort-ann-students-offer-warm-welcome-to-classmate-battling-leukemia#

Mikey loves hockey

Mikey is a sweet boy who loves being with his friends.  Although he was very excited to return to school, his parents have decided it would be best for him to attend ½ days, since Mikey is physically exhausted and can’t make it through a full day.  

He likes reading, playing hockey and being a tiger scout…and of course, he also loves the color orange.  We have high hopes for a matching donor, and when the time is right, a successful transplant. Keep going Mikey!

 

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