Aplastic Anemia Archives - The Icla da Silva Foundation

17-Year-Old Blackbelt, Needs a Fighting Chance to Beat Aplastic Anemia

Anika Mathur is 17 years old and lives in California. Anika, or Ani, is a dedicated student and an accomplished classical dancer who loves to cook.

Ani is also a fighter. She holds a blackbelt in Taekwondo, the Korean martial art that focuses on striking your opponent as a means of self-defense.

Tae Kwon Do translates to “the way of foot and fist”. It is often characterized by an inordinate amount of jumping and spinning…with repeated ‘kicks to the head’.

Given her training as a classical dancer, Anika took well to martial arts.

A Different Kind of Battle

Now, Anika is fighting a much different type of battle.

Last year she was diagnosed with Aplastic Anemia, a life-threatening condition where the body doesn’t produce enough new blood cells.

Aplastic Anemia leaves the patient feeling fatigued and with a higher risk of infection and the potential for uncontrolled bleeding.

Since her diagnosis, and given the repeated visits to the hospital, Anika has been homeschooling. Her parents hope that she can still graduate High School on time, while also maintaining a lower risk of infection.

Anika will need more than “foot and fist” to combat Aplastic Anemia. To survive, she needs a matching stem cell donor from a stranger.

Give Anika a Fighting Chance

There is no matching donor in her family. There is also no match on the national Be The Match marrow registry.

Because Anika is of Indian descent, the odds of a successful transplant are greater if we can find a donor with similar South Asian ancestry.

We need more South Asians to include themselves on the registry.

We have been recruiting within Indian communities across the country. If you are aware of opportunities where we can reach a larger audience, please email us at info@icla.org and include “For Anika” in the subject line.

Help us find a matching stem cell donor for Anika to survive.

Include Yourself on the Registry

If you are between the ages of 18-40, you can easily add yourself to the registry. Ask your friends and family to join as well. Click the link below to set up an account and answer a few questions. A kit will be mailed out, asking you to swab the inside of your cheek for HLA typing.

Once you return the kit, your name will be included on the registry to see if you are a match for Anika…or any of the other 14,000 patients who do not yet have a matching cure.

Help us find a cure for Anika. Help us give her a fighting chance.

JOIN FOR ANIKA

Written by Bret Itskowitch

Su Médula ósea Dejó de Funcionar

Era el 2007, mientras estudiaba en la Universidad Politécnica en San Juan, cuando Miguel fue diagnosticado y hospitalizado con anemia aplásica. La anemia aplásica es una condición rara y grave. La médula ósea deja de producir suficientes células sanguíneas, lo que deja al paciente cansado y en riesgo de infecciones potencialmente mortales. Afecta la producción de glóbulos rojos y glóbulos blancos, y a las plaquetas.

Durante el año siguiente, Miguel recibió tres tratamientos diferentes con la esperanza de estimular su médula ósea en el Hospital Auxilio Mutu en San Juan. También recibió transfusiones semanales de sangre y plaquetas. En septiembre del 2008, estaba combatiendo una infección severa cuando un doctor le dijo a su familia que era posible que no sobreviviría. Su hematólogo, Dr. José A. Lozada lo trasladado por aire a Houston, TX, al MD Anderson Cancer Center, donde estabilizaron su condición y comenzó el proceso para un trasplante de médula ósea.

Un Trasplante Exitoso de Médula ósea

A pesar de la gravedad de su situación, resulta que Miguel fue muy afortunado. En unos pocos meses, su condición se estabilizó y sucedieron las siguientes cuatro “imposibilidades”:

Se identificó un donante compatible. (Los pacientes hispanos y latinos solo tienen un 46% de probabilidades de encontrar un donante compatible en el Registro).
El donante dijo que sí a una donación de médula ósea. (Solo el 37% de los donantes hispanos / latinos dicen sí cuando reciben la llamada).
Miguel recibió un trasplante de médula ósea para salvarle la vida el 4 de noviembre de 2008.
100 días después, su nueva médula ósea comenzó a producir células sanguíneas.

Las probabilidades estaban en contra de Miguel, pero él las venció. Regreso a su ciudad natal en Puerto Rico. Continuó viajando al MD Anderson Cancer Center para chequeos. Después de 2 años en el hospital y con todos los medicamentos y tratamientos de quimioterapia, su cuerpo estaba débil. A través de un amigo, que era un entrenador de spinning, Miguel comenzó a tomar clases de spinning para recuperar las fuerzas. Su amigo también lo presentó a las carreras de bicicleta de montaña.

Después de su Trasplante

Las carreras de bicicletas eran nuevas para Miguel. Le dio algo que había estado perdiendo después de todo ese tiempo en el hospital: movimiento, libertad y entorno natural. En muy poco tiempo, comenzó a entrenar y conoció a muchos nuevos amigos. También empezó a participar en carreras de bicicleta de montaña de larga distancia. Sus finales de carrera fueron bastante impresionantes:

Baja Epic – 2 ° lugar en su grupo de edad
Prickly Pedal – 2 ° lugar en su grupo de edad
Festival de bicicleta de montaña de Pisgah – 17 ° en la categoría de hombres abiertos
Whisky Off Road: top 20 en general

Regresó a la Universidad Politécnica y terminó su carrera de ingeniería eléctrica. Trabaja medio tiempo como ingeniero eléctrico y también trabaja tiempo completo en la farmacia de su padre.

Miguel dice que su trasplante lo hizo más fuerte que antes, tanto mental como físicamente. Él está muy agradecido.

Ayudando a Otros

A medida que Miguel se aproxima al décimo aniversario de su trasplante de médula ósea, quiere involucrarse más en la creación de conocimiento sobre cómo unirte al registro Be The Match. Al contar su historia, quiere motivar a personas que se unan la registro y animar a los pacientes que necesitan un trasplante de médula ósea a que nunca pierdan la esperanza. Un trasplante de médula ósea le salvó la vida. Él insiste en que lo hizo más fuerte que antes, tanto física como mentalmente. “Podemos volver a la normalidad después de un trasplante … puede fortalecernos”.

“Nada es Imposible”

Puedes unirte al registro en apoyo de Miguel haciendo clic en este enlace:

ÚNETE AL REGISTRO

También puedes ayudar a aumentar el conocimiento sobre la importancia sobre unión al registro. Miguel fue muy afortunado. No todos los pacientes logran encontrar un donante compatible. Simplemente no hay suficientes personas registradas para ser donantes potenciales. Puedes cambiar eso uniéndote al registro y difundiendo la palabra. Tú, tus amigos y tus familiares pueden convertirse en salvavidas … nada es imposible.

Para aquellos que no están listos o no pueden unirse al registro, Miguel te recuerda que una pequeña donación ayuda a nuestros esfuerzos para agregar donantes más étnicamente diversos al Registro Be the Match. La Fundación Icla da Silva se concentra especialmente en proporcionar resultados equitativos para los pacientes durante el trasplante, y eso no puede suceder hasta que exista más diversidad en el Registro. Dona en honor de Miguel a:

HAZ UNA DONACIÓN

Por favor ayúdanos a compartir la historia de Miguel. Nada es imposible; como Miguel, creemos que más personas se unirán al registro y pacientes que sufren ganarán más esperanza.

ÚNETE AL REGISTRO

His Bone Marrow Stopped Working

It was 2007, while studying at Universidad Politécnica in San Juan, when Miguel was hospitalized and diagnosed with aplastic anemia. Aplastic anemia is a rare and serious condition. The bone marrow stops producing enough blood cells, leaving the patient feeling fatigued and at risk for life threatening infections. It affects the production of both red and white blood cells, as well as platelets.

During the next year, Miguel received three different treatments in the hopes of stimulating his bone marrow at Hospital Auxilio Mutu in San Juan. He also received weekly blood and platelet transfusions. His body was suffering from infection when in September of 2008, a doctor told his family that he could die within the week. His hematologist, Dr. Jose A. Lozada had him air lifted to Houston, TX to the MD Anderson Cancer Center, where they stabilized his condition and began the process for a bone marrow transplant.

A Successful Bone Marrow Transplant

Despite the severity of his situation, it turns out Miguel was very fortunate. In a few months time, his condition stabilized, and the following four ‘impossibilities’ happened:

A matching donor was identified. (Hispanic and Latino patients only have a 46% chance of finding a matching donor on the Registry.)
The donor said yes to a bone marrow donation. (Only 37% of Hispanic/latino donors say yes when they get the call.)
Miguel received a life-saving bone marrow transplant on November 4, 2008.
100 days later, his new bone marrow began producing blood cells.

The odds were stacked against Miguel, but he beat them. Miguel moved back to his hometown in Puerto Rico. He continued to travel back to the MD Anderson Cancer Center for check-ups. After 2 years in the hospital, and with all of the medications and chemo treatments, his body was weak. Through a friend, who was a spinning coach, Miguel started taking spinning classes to gain back body strength. His friend also introduced him to mountain bike racing.

After His Transplant

Bike racing was new for Miguel. It gave him something he had been missing after all of that time in the hospital – movement, freedom and natural surroundings. In a very short time, he met many new friends and began training, entering and placing in long distance mountain bike races. His finishes were quite impressive:

Baja Epic – 2nd place in his age group
Prickly Pedal – 2nd place in his age group
Pisgah Mountain Bike festival – 17th in open mens category
Whiskey Off Road – top 20 overall

He went back to Universidad Politécnica and finished his electrical engineering degree. He works part time in electrical engineering and full time at his father’s pharmacy.

Miguel says that his transplant made him stronger, both mentally and physically, than before. He is very grateful.

Helping Others

As Miguel approaches the 10 year anniversary of his bone marrow transplant, he wants to become more involved in creating awareness about joining the Be The Match registry. By telling his story, he wants to motivate people to join, and encourage patients in need of a bone marrow transplant to never lose hope. A bone marrow transplant saved his life. He insists it made him stronger, both physically and mentally, than he was before. “We can be normal again after a transplant…it can make us stronger.”

“Nothing is Impossible”

You can join the registry in support of Miguel by clicking this link: join the registry

You can also help increase awareness about the importance of joining. Miguel was very fortunate. Not every patient is successful in finding a matching donor. There simply aren’t enough people who have registered to become a potential donor. You can change that by joining the registry and spreading the word. You, your friends and family may become life savers…nothing is impossible.

For those who are unwilling or not able to join the registry, Miguel is reminding them that a small donation helps our efforts to add more ethnically diverse donors to the Be the Match Registry. The Icla da Silva Foundation is especially focused on providing equitable outcomes for patients as they go through transplant, and that can’t happen until there is more diversity in the Registry. Donate in Miguel’s honor at:

make a donation

Please help us share Miguel’s story. Nothing is impossible; like Miguel, we believe that more people will join the registry and patients who are suffering will gain more hope.

join the registry