REMOVING BARRIERS TO TREATMENT: Cindy’s Story

Hope, ID

Cindy and her husband were enjoying retirement, but their golden years were threatened when she was diagnosed with acute myeloid leukemia (AML). The only path to a cure was a bone marrow transplant, a long and arduous therapy that carries a high risk of complications. The news overwhelmed Cindy and her husband, but she was determined to fight.

Following her diagnosis, Cindy spent two critical months in the hospital.

After being approved for a transplant, they had to relocate to Seattle. Treatment is intensive and bone marrow transplant patients are required to stay within 30 miles of the transplant center in case of complications.

Her husband packed up their dog Murphy and moved in with family to be closer to the Fred Hutchinson Cancer Center.

It was a scary, challenging time. Battling her disease was compounded by the stress of mounting expenses. No one plans to receive a diagnosis of blood cancer. As a couple on a fixed retirement income, the added cost of housing, transportation, and meals while in treatment was a lot to take on. How would they get through this?

That’s when the Icla da Silva Foundation stepped in. Thanks to the generosity of donors, we provided critical funds for transportation and meals during treatment.

Cindy was grateful for the support she received.

“The assistance helped us stress less about all the bills and focus more on getting well. Having cancer is stressful enough. It’s wonderful knowing that there is an organization like the Icla da Silva Foundation to lessen the burden.”

Her transplant was successful and we wish Cindy a full recovery.

Will you help a patient like Cindy as they battle a life-threatening blood cancer? Your donation will give them hope and strength to face each day.

Please donate today.

DONATE TODAY

Written by: Bret Itskowitch

REMOVING BARRIERS: Fanny’s Story

Patchogue, NY

Fanny has always been a healthy, hardworking woman.

But last year, she was overcome by debilitating back pain. She thought it was just from working long hours. When a lump suddenly appeared on the back of her neck, her husband Angel sent her to the doctor and a biopsy was ordered.

Fanny was diagnosed with an aggressive form of Peripheral T-cell lymphoma. This is a fast-growing blood cancer that could quickly metastasize and spread to the rest of her body.

They needed to take immediate action.

She was sent for chemotherapy treatments. As a result, she could no longer keep her job as a childcare worker. The chemo left her so fatigued, that Fanny barely had the strength to keep up with her own children.

Her husband Angel was her rock. He kept insisting that everything would be ok. He would take care of her, and they would beat this together as a family.

After a year of chemotherapy, Fanny was finally scheduled to receive a bone marrow transplant.

From Bad to Worse

Fanny and Angel have always worked hard. It wasn’t easy, but they did it together. They were able to keep the bills paid and even save a little for their future.

Now that Fanny was unable to work, finances were tight. Angel had to take eight weeks of unpaid leave to support her during treatments. This left the family with limited income and their savings depleted.

Once Fanny was scheduled to receive a transplant, Angel was told he would need to take months off from work to be his wife’s caregiver.

They have been battling a life-threatening disease with tremendous uncertainty for a year.

Now they had to worry about how they would pay the bills. How would they keep food on the table and pay the rent while Angel was a full-time caregiver? Fanny and her husband were afraid, they worried about their children.

Support for a Family in Need

That’s when the Icla da Silva Foundation stepped in. We provided vital financial support, funding rent, meals, and transportation during her treatment.

The Icla da Silva Foundation changes lives for families who face the burden of blood cancer. We provide much-needed financial support, helping a patient like Fanny focus on their recovery, not their bills.

You Can Help a Patient’s Fight for Life

Her bone marrow transplant was successful. The worst is over, and Fanny is grateful to be alive. She refers to the Icla da Silva Foundation as her “Angels”. We came into her life unexpectedly and provided critical support at a time when she needed it the most.

Fanny says she will be eternally grateful for the Icla da Silva Foundation. She is thankful for the life changing support she received.

You can help a patient like Fanny in their battle against blood cancer with a financial donation.

Your donation will help cover essential expenses like transportation, meals, and housing so a patient family can focus on healing.

Your gift will ensure that they won’t have to delay treatment.

Please donate today.

DONATE TODAY

Written by: Bret Itskowitch

REMOVING BARRIERS: Marc’s Story

Halfmoon, New York

After several years of unexplained pain in his stomach, Marc was diagnosed with myelofibrosis. It’s a rare cancer of the bone marrow that disrupts the production of blood cells.

His only cure was a bone marrow transplant.

Marc received a transplant, but he encountered many complications during treatment.

A Long Recovery Process

Marc was in treatment much longer than expected. A blood clot lead to encephalopathy. His heart stopped several times, which led to a pacemaker. He had GVHD and he may need to have a liver transplant.

He was expecting to be away from home for 1-3 months, but it took more than 6 months.

As is usual with most transplant centers, he was required to stay within 30 miles of the medical center during outpatient treatment. But Marc, his wife, and their teenage twin boys live 150 miles away.

The Caregiver Experience

Marc’s wife Talin stayed with him as a caregiver.

The transplant team requires a dedicated caregiver before they will even schedule a bone marrow transplant. Someone must be available full-time to help the patient during transplant and recovery.

A caregiver assists with transportation to the outpatient clinic, maintaining a medication schedule, and keeping an eye out for changes in the patients condition or signs of infection.

Of course, a big part of the job is love and attention.

Overcoming Obstacles/Grateful for Assistance

Marc had gone through diagnosis, treatment, and a bone marrow transplant. This was followed by medical complications and a long road to recovery. All during that time his wife took on caregiver responsibilities.

They were both far from home for 6 months. Their boys would visit by train.

Obviously, neither of them could work during treatment and outpatient recovery, but the extra expenses kept coming in.

Thanks to the support of donors like you, the Icla da Silva Foundation helped fund accommodations and meals while Marc was in treatment.

He is grateful.

“It was a relief to have financial help, especially with my wife and I being out of work and having many more expenses being in the city longer than expected. We were both shocked and became emotional by the generosity.

It is such a wonderful organization that can take a tragic event in one’s life and turn it around to ease the burden of others going through a similar situation.”   -Marc M.

Looking to the Future

Marc is still under medical supervision, but at least he is at home surrounded by his family.

Still, we’re sure he would like to get back to the way things used to be.

Marc was an 8th grade social studies teacher, dean of students, and coach for both football and basketball. He hopes he’ll be well enough to return to work in the future.

He would also like to take a much-needed vacation.

Before all that, Marc must wait for his immunity to improve. He just wants to be able to see his family and friends without masks or restrictions.

We hope that happens soon, and we wish the best for Marc and his family. The Icla da Silva Foundation was happy to play a role in his recovery.

You Can Help a Patient in their Time of Need

Your donation will help a patient overcome obstacles during treatment and put them on a path to recovery.

Please donate to ease the unexpected burdens of a patient in treatment to receive a marrow transplant.

Support our mission by making a donation today!

DONATE TODAY

Written by: Bret Itskowitch

A Social Worker Describes Her Experience with Patient Families who need financial assistance from the Icla da Silva Foundation

Cary, North Carolina

Tara McAteer is a clinical social worker with 18 years of experience. She specializes in supporting patients and families with acute and chronic medical conditions.

She recently shared her experience working with patients who needed financial assistance while in treatment to receive a life-saving bone marrow transplant. Below is Tara’s story.

The Patient Experience

Needless to say, life completely changes once you have a child diagnosed with a life-threatening disease, and they need to prepare for a bone marrow transplant.

The change impacts every single aspect of life for the patient, their parents, and even their siblings.

Imagine your child going through months of treatment and being told she needs more treatment or a different treatment.

Then you learn that a bone marrow transplant is the only thing that can potentially save or extend her life. It’s a frightening situation.

The families I have worked with move forward with courage and determination, but it’s impossible for anyone to predict the journey they will endure.

No one can say how many months their child will be in isolation, or the frequency of emergency room visits.

Nobody can estimate the number of readmissions or the exact length of time they will have to spend in post-transplant follow-up in the outpatient clinic.

“How Will I Make This Work?”

Every family has the same painful questions.

Will our insurance cover it? How much longer can I stay out of work? We don’t have any more savings. I already lost my job, how will our family survive?

What about my other children? Who is going to stay home with them, help them with homework, bring them to school?

This has gone on too long – how will I make this work?

Families who were financially stable before diagnosis, may not be in the same position after so many months or even years of treatment.

Many of my families were already experiencing financial hardship before their diagnosis.

The Icla da Silva Foundation

This is where the Icla da Silva Foundation comes into the picture. Their application is quick and completed in coordination with a transplant social worker like me.

Once approved, the assistance is immediate.

Most of the families I referred for support were being threatened with eviction or being evicted. Some had homes that were already in foreclosure.

What is so special about this organization is that part of the criteria for eligibility is treatment-based. Help is available to children scheduled to receive a transplant regardless of their diagnoses. They are helping patients with cancer, immunodeficiencies, genetic conditions, hematological illnesses, sickle cell disease, the list goes on.

In addition to financial support, the emotional impact of receiving assistance from the Icla da Silva Foundation is indescribable for most families. It allows the patient’s family to catch a breath, even if just for a moment before they need to redirect their attention to the next medical issue or the fear of what’s still to come.

The gratitude they feel is something that stays with them forever.

You are Making a Difference

No family can do it alone. No social worker can do it without the support of an organization like the Icla Da Silva Foundation.

Thank you to all of your generous donors! You are all making a difference.

Sincerely,
Tara McAteer, LCSW, ACSW, OSW-C

Thanks to Tara for sharing her perspective and experience. We are grateful for the work that she does.

Please consider making a donation to support a patient’s family on their difficult path to receive a bone marrow transplant. You will help keep food on the table or a roof over their head while a patient goes through treatment and transplant.

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Las Vegas, Nevada

Every family experiences great difficulty while their loved one battles a life-threatening disease. So many lives are thrown into turmoil once a diagnosis is revealed.

In addition to heart-wrenching concerns and fear, many struggle with the financial pain of keeping it all together.

This is the story of one patient’s family.

Diagnosis and Treatment

Luis was diagnosed with acute myeloid leukemia (AML).

His only hope for a cure was a bone marrow transplant. But he lived in Las Vegas where there is no transplant center, so he had to travel to Southern CA to receive care and prepare for his transplant.

Although his family comes from a modest background, they made it work for several months. Unfortunately, medical complications ensued, and they eventually exhausted their savings.

Luis’ wife Madelourdes remained with him as his caregiver.

The Caregiver Requirement

Every transplant center requires a 24/7 caregiver to help a patient during treatment and transplant. It’s required by the medical team, but the expenses are not covered by many patients insurance. The cost of housing, transportation, and meals became too much for Luis’ family.

Their only source of income came from their daughter, who was living in Las Vegas. As a single mom working two jobs, she did the best she could.

Luis’ wife slept on two chairs at her husband’s bedside.

Assisting with Lodging and Meals

The Icla da Silva Foundation assists bone marrow transplant patients and their families during a very difficult time. Through our IclaCares program, we were able to provide funds to Luis’ family for lodging and meals.

The family will use the lodging funds sporadically so his wife and caregiver Madelourdes can get a decent night of sleep and a shower every once in awhile while her husband completes treatment.

As soon as they received the news, the family called us with tears of joy. They were overwhelmingly grateful for the support we provided.

We wish Luis a full recovery.

We were happy to help this family. We only wish we could do the same for more families in their urgent time of need. No one should have to sleep between two chairs while their loved one battles a life-threatening disease.

You Can Help

Your donation will make a difference to a patient family in desperate need. Every gift, no matter the size, will help a family who has a loved one on the difficult path to receive a bone marrow transplant.

Please consider making a donation to help a patient family like Luis’.

Thanks for reading.

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Written by: Bret Itskowitch

REMOVING BARRIERS: Owen’s Journey

Shishmaref, Alaska

Owen’s story begins in the remote village of Shishmaref, Alaska. His family lives on a barrier island just north of the Bering Strait. With a population of only 530 people, it’s a place where family bonds, tradition, and heritage run deep.

At only 9 years old, Owen’s life took an unexpected turn when he was diagnosed with severe aplastic anemia, a rare, life-threatening blood disorder.

Owen’s Journey to a Cure

His family embarked on a daunting journey so Owen could receive treatment.

The closest medical center capable of providing the specialized care that Owen needed was two thousand miles away in Seattle. The prospect of leaving their close-knit community and facing an uncertain future was overwhelming, but they had no choice. Owen and his family set off on a path that would test their strength and determination.

Owen’s first bone marrow transplant brought a glimmer of hope, but it was short-lived.

The treatment was not successful and the transplant failed. Once again, Owen’s health hung in the balance. His family gathered their courage and they will try again.

Owen is preparing for his second bone marrow transplant and we wish him success.

Overcoming Financial Strain

The toll of his medical journey and the burden of being far from home continues to weigh heavily on Owen’s family. The financial strain is enormous.

Recognizing their challenges, the Icla da Silva Foundation provided crucial funds for transportation to Seattle. Understanding the high price of internet in Western Alaska, we also offered support for wireless bills, ensuring that Owen stays connected with his loved ones back home.

A Unique Perspective

We often provide meal assistance to patient families. A parent cannot work for many months while their child is in treatment. The combination of medical bills and living expenses can be overwhelming, especially when you are living in an unfamiliar city with no income.

Owen’s situation gave us a unique perspective. His father Christopher told us that, “back home in Alaska, we hunt and gather year-round for most of our food.”

They never had to rely on a grocery store for sustenance.

It was both unfamiliar and expensive. We provided the family with meal assistance so they can focus on Owen’s treatment.

Owen is still fighting his life-threatening illness. His family was forced to travel far from home and stay in a strange city. They had no one else to turn to.

The Icla da Silva Foundation stepped in to provide much-needed financial support for Owen’s journey to receive a bone marrow transplant.

A Father’s Gratitude

Owen’s father expressed profound gratitude for the help they received, “Thank you very much from the bottom of my heart and on behalf of my family.” His heartfelt words are a reminder of the dramatic impact we can make on a family in their darkest moments.

We wish Owen a successful transplant and hope that he and his family will soon be able to return home to Alaska.

You Can Help

The Icla da Silva Foundation’s patient assistance program is funded directly by people like you. The cost of transportation, housing, and meals during treatment are not covered by medical insurance.

Will you donate to provide critical financial assistance during treatment? Your support will ensure that a patient doesn’t have to postpone or delay their bone marrow transplant.

Your generosity will provide crucial support to a patient just like Owen.

DONATE TODAY

You can watch the TikTok Owen’s Dad posted of his first transplant, shared on our YouTube channel.

Written by: Bret Itskowitch

REMOVING BARRIERS: Jake’s Story

Columbia Station, Ohio

Meet Jake and his sister Bella.

Jake is a brave boy who fought a difficult journey with acute myeloid leukemia (AML). After being diagnosed with this aggressive form of blood cancer, he received treatment and went into remission. But then he relapsed and urgently needed a bone marrow transplant.

Luckily, his younger sister Bella was a matching donor, and Jake received a transplant.

Throughout treatment, Jake and his family faced many hardships. These included the financial strain of his mom having to stop working, and the need to stay at a Ronald McDonald house to be close to the hospital.

During recovery, Jake experienced painful mucositis that made it hard for him to eat.

Thanks to the IclaCares program, Jake and his family received much-needed assistance with meals and groceries. Your support helped reduce some of the stress and allowed them to focus on Jake’s recovery.

BECOME A SUPPORTER

Join Icla Cares by Supporting Patients and Their Families

Jake is still in recovery.

He just celebrated his 16th birthday. We wish him many healthy, Happy Birthdays in the years ahead.

You can make a difference in the life of a patient like Jake by making a donation.

Your gift provides critical assistance, including meal support during treatment. Help us continue to provide comfort and support to a patient on their journey to receive a bone marrow transplant.

Thank you.

DONATE TODAY

Written by: Bret Itskowitch

REMOVING BARRIERS – Nasir’s Story

Hampton, Virginia

For nineteen years, Nasir lived a life filled with pain and uncertainty due to sickle cell disease. His mother SueAnn, watched helplessly as her son endured countless complications, blood transfusions, and pain crises.

She vividly remembers the first time Nasir woke up screaming in pain. He was only two months old and his little hands were swollen to the size of a man’s hands.

When she called the doctor, he said Nasir was going through a pain crisis and he prescribed morphine. She remembered thinking, “morphine, for my two-month-old baby, why is this happening?”

That was their struggle for 19 years.

They never knew when the next crisis would strike, or how severe it would be. It was a life filled with pain, uncertainty, and fear. Just like any mother would, SueAnn felt helpless and defeated.

Finding a Cure

Then on one fateful day, everything changed.

They met a doctor who recommended a bone marrow transplant, using stem cells from Nasir’s own body.

SueAnn was hesitant at first, but the doctor explained the process and the expected outcome.

SueAnn described this doctor as “an Angel,” and she suddenly felt full of hope.

With renewed faith, she knew her son Nasir’s life was about to change.

An Autologous Bone Marrow Transplant

Using an autologous bone marrow transplant to treat sickle cell disease is relatively new. The process uses stem cells from your own body, so it doesn’t rely on a matching donor. But it comes with potential complications and challenges.

Nasir went through the treatment, and although it’s still early, his transplant was successful.

SueAnn felt like her sister Lisa, who had passed away from sickle cell disease one year ago, was watching over them and helping guide Nasir through his transplant.

Receiving Support from the Icla da Silva Foundation

As a single mother, SueAnn admits that the process was hard on them.

She could not work because she needed to be with her son during his treatments and transplant. Fortunately, the Icla Cares program provided financial assistance for gas, utilities, and groceries while Nasir was in treatment.

SueAnn is grateful for the support they received. She talked about the strain they endured.

She told us that the Icla da Silva Foundation gave her son joy. After learning about the support, Nasir wasn’t just happy for himself but “excited for the other families who are able to receive a happy, healthy, healed life.”

You Can Help

If you feel inspired by this story about Nasir, please consider donating to the Icla da Silva Foundation. We remove barriers to treatment by providing financial support for expenses during treatment and transplant.

Your gift will remove barriers for a patient in need during their bone marrow transplant.

DONATE TODAY

Written by: Bret Itskowitch

REMOVING BARRIERS – Matthew’s Story

Beeville, Texas

Matthew is a devoted college advisor in a small town in Texas.

Last January, he was forced to put his passion for education aside when he was diagnosed with an aggressive form of leukemia.

Over the past year, Matthew has endured many rounds of chemotherapy, multiple biopsies, and CAR-T cell therapy. He and his wife Krystal were forced to relocate so he could be closer to the transplant center to prepare for his bone marrow transplant. They left behind their home and the students Matthew had devoted his career to guiding.

Fortunately, Matthew had his wife Krystal by his side as his full-time caregiver.

This January, he finally received his bone marrow transplant.

Forever Grateful

Matthew tells us he will be “forever grateful” for the Icla Cares program. The Icla da Silva Foundation provided Matthew with financial assistance for lodging, gas, and groceries while he was in treatment. 

Thanks to our donors for making financial support possible. 

In addition to helping him overcome financial hardships related to his bone marrow transplant, Matthew says we made him feel like he was never alone.

You Can Help a Patient in Need

Today, Matthew is in remission, and the couple can finally breathe a sigh of relief.

But they know there are others out there fighting the same battle. Many do not have the support they require.

That’s why the Icla da Silva Foundation is asking for your help.

Too many patients are delaying treatment because of related expenses. While preparing for a bone marrow transplant, the cost of housing, transportation, and meals are not covered by insurance.

Your donation can make a difference.

Your gift will ensure relief for a patient like Matthew on his journey to a cure.

DONATE TODAY

Written by: Bret Itskowitch

REMOVING BARRIERS – Larissa’s Story

Winchester, Virginia

“Your foundation has saved my home, helped my children, and myself. I am just so grateful.”

Larissa’s life took an unexpected turn when she was diagnosed with a rare form of leukemia in 2018. As a single mother, her world was turned upside down while battling a life-threatening disease.

She received a bone marrow transplant, but unfortunately, there were complications. Larissa was forced to undergo a second transplant in March.

One month before her scheduled transplant, Larissa received an eviction notice.

This added to the financial and emotional strain of her situation. Larissa has been unable to work due to her illness, and she had been in and out of the hospital with various infections and complications.

She was worried about her family.

Despite applying for assistance from other foundations, she received no response.

Icla Cares Supports A Patient in Need

When the Icla da Silva Foundation learned about Larissa’s situation, the Icla Cares program immediately stepped in to provide both financial and emotional assistance for her family. We paid her landlord to prevent eviction and provided emotional support to help her cope with the mental toll of her disease.

Thanks to our support, Larissa was able to focus on treatment and receive her bone marrow transplant.

Maintaining Close Contact

Adriana, an Icla Cares team member, kept in close contact with Larissa to provide a listening ear and a friendly voice whenever she needed it.

We want patients to know that they are never alone.

Adriana’s words of empathy and understanding helped lift Larissa’s spirits during some of her darkest moments.

Larissa,

Remember to call me anytime that you need to talk to someone. I am here for you. I am not a licensed therapist, but I consider myself a good friend. I am just a call away.

I look forward to hearing from you.

Sincerely,

Adriana

You Can Make a Difference

Join us in our mission to remove financial barriers for patients who require a bone marrow transplant. Your gift can make all the difference in the world to a patient like Larissa.

Your donation will provide critical financial assistance to those who are struggling with out-of-pocket costs during treatment.

Together, we will help patients like Larissa focus on treatment and overcome the challenges caused by illness. Click on the button below to make a difference today.

donate today

Larissa reminds us to “be thankful and be grateful. Hold your babies tight and cherish every single second…as we all know, tomorrow is not promised.”

Written by: Bret Itskowitch