Join the team dedicated
to supporting patients who
need a bone marrow transplant.
Sign up to receive stories and updates on patients we help, and how you can get involved. It’s worthwhile, we promise.
Watch a Cancer Patient Finally Meet her Guardian Angel, the Girl Who Donated her Bone Marrow
Every year, the Icla da Silva Foundation hosts their Hope Gala in NYC. The highlight of the evening is the first time meeting between a patient and their life-saving bone marrow donor. The meeting happens on stage, in front of many supporters, most of whom are crying as the patient and donor share their story.
You can read about the Hope Gala here, but this tells the story of one of those patients…and their matching donor.
When Stephanie was a freshman in college, she fainted for no apparent reason. Her friends got her up and took her to the ER. The doctors checked that she didnlt have a concussion, and said that she was just malnourished.
Over the next few weeks, Stephanie continued to feel weak. She came close to fainting a few more times, so she went in for a check-up.
After reviewing her bloodwork, the doctor sent her to a cancer specialist.
On March 10, 2014, Stephanie was diagnosed with AML (acute myeloid leukemia), with an FLT 3 mutation. The cancer was very aggressive. She was hospitalized immediately.
An FLT 3 mutation meant that her body was actually encouraging the growth of the leukemia cells.
The oncologist said that she would need a bone marrow transplant, as soon as possible, in order to survive.
Her family began working with the Icla da Silva Foundation and we immediately started organizing marrow drives.
Fortunately, a matching donor was identified very quickly. On August 6, 2014, Stephanie received her bone marrow transplant.
But her journey wasn’t over. Many complications followed the transplant.
She battled serious infections and septic shock. One leg was on the verge of amputation. Stephanie had developed a life-threatening liver disease, followed by kidney failure.
Then her body went into a coma. They weren’t sure she would wake up. The doctors gave her 72 hours.
Fortunately, Stephanie is a survivor. She took her battles head-on and never showed fear. She is now cancer-free, thanks to her doctors…and her life-saving bone marrow donor.
When we asked her what she would tell people who were considering joining the registry, she reminded us that “small actions can have big results”.
Stephanie explained to us, “That small gesture of swabbing your cheek, to see if you are a match for someone, will literally change your life. When you go through a donation, when you utilize the power you have to save a life, you gain a connection with a complete stranger. You will have made a difference in someone else’s life. You would touch an entire family.”
“You will give the gift of life to a long list of friends and relatives that you never even knew existed.”
Crystal was on the other side of the country when she joined the registry in 2007. There was a blood drive at her school and representatives from Be The Match were at that blood drive to sign people up for the registry.
Crystal came to donate blood and she was inspired by another opportunity to help people, so she joined the registry.
In the summer of 2014, while at lunch with her mother and sister, she received the call that she matched a patient in need. Crystal agreed to donate her bone marrow.
Crystal explains that she did a lot of health-related interviews over the phone, followed by a number of blood tests and screens. In addition to checking that she was the perfect match for a patient, they also wanted to ensure that her health would not be subject to any challenges.
Crystal told us, “The actual donation was over before I knew it…literally. They knock you out for it. And the recovery wasn’t too bad. Everyone involved was so nice and helpful; they made all my appointments, took care of all the paperwork and financials, all I had to do was show up. The whole thing was relatively painless.”
5 years after the transplant, Stephanie and Crystal had the opportunity to meet for the first time. It happened on stage, in NYC, at the Icla da Silva Hope Gala.
In a ballroom filled with 300 onlookers, Stephanie and Crystal met face-to-face. They didn’t know each other…now they are sisters. You can watch the video below.
Not everyone who joins the registry ends up matching a patient and saving a life, but you have to take that first step and include yourself.
Please consider joining the registry in honor of Stephanie and her donor Crystal.
join the registry
This story ends with a quote from Crystal to Stephanie…”I know the past few years haven’t been easy but you’ve traveled through them with immeasurable dignity and grace. I am so incredibly proud of you and honored to meet you. And just because the donation is over doesn’t mean my involvement in your fight is over. We’re in this together.”
Please consider joining the registry. As Crystal says, “we’re in this together.”
Written by Bret Itskowitch
The Reason We Do What We Do
Two Cancer Patients Meet Their Life-Saving Bone Marrow Donors
The Icla da Silva 27th Hope Gala occurred recently in NYC. It was a wonderful evening spent reconnecting with old friends and making new ones. The cocktail hour was a buzz with beautiful smiles and interesting conversations. While the cameras were flashing, cocktails were poured, the band played lite jazz and delicious hors d’oeuvres hit just the right spot.
A silent auction was held during the cocktail reception in order to raise funds for the Foundation. Items were donated from near and far, including world-class dining from Per Se and restaurant Daniel, roundtrip airfare from JetBlue, select wines, designer jewelry, and a host of experiences from various spas, sports venues, and salons.
There are still a few items available. You can make a bid to win one of these items via this link.
Similar to years passed, the highlight of the evening was the first time meeting between a patient and their life-saving bone marrow donor.
U.S. Law maintains strict rules regarding the confidentiality of bone marrow patients and their donors. Both patient and donor must wait at least one year before they are asked if they consent to share their information. Hopefully, if they each say “yes”, they get the opportunity to meet face-to-face.
The Icla da Silva Foundation is fortunate to make these meetings happen every year.
But this year was different, this year we were able to showcase two patient/donor meetings.
We arranged a meeting between 8-year-old Giliani from Miami, who was diagnosed with Kostman’s disease, and her bone marrow donor, Marta Sanchez, from New York.
Marta had signed up to become a donor at a drive organized by the Icla da Silva Foundation many years ago. When she finally received a call that she matched a patient in need, she immediately said yes to the transplant.
Their first meeting was a heart-warming experience for everyone in the room. In the presence of nearly 300 people, among the glaring lights and flashing cameras, adorable Giliani came up to the stage with her mom…and met Marta, the complete stranger who saved her life.
You can read their story and watch a video of their emotional first-time meeting here.
As more people are added to the registry, the chances for a life-saving transplant increase. This year the Icla da Silva Foundation was able to share a second patient/donor meeting at our Hope Gala.
We also had the great fortune to present the first time meeting between Stephanie, a young woman from New Jersey who was diagnosed with AML (acute myeloid leukemia) and her life-saving donor Crystal Dozier from Arizona.
As a leukemia patient, Stephanie and her family had been working with the Icla da Silva Foundation during their search for a match. Stephanie had been to some of our events, and she came prepared with a speech…but she wasn’t prepared to hold back the tears…and neither could anyone else in the room.
Everyone watched as Stephanie and her donor Crystal hugged for the first time on stage. You could feel the intensity of that hug, and tears of joy were flowing at every table in the ballroom.
Read more about Stephanie’s battle for survival and watch the video of their first-time meeting via this link.
The Hope Gala was a heartwarming and unforgettable evening. But our Gala was more than just two first-time meetings between a patient and their donor, it was a celebration of 27 years of service, with more than half a million potential donors added to the registry.
The Gala was also in honor of the nearly 800 people who registered through Icla da Silva and saved lives by donating their bone marrow to matching patients.
We are grateful for those lifesavers. We also appreciate the many people who support our mission.
There are several ways that you can help us continue our mission of saving lives. The top 3 are as follows:
Our vision is to ensure that every patient, regardless of ethnicity, has equal access to a matching stem cell donor. We also strive to give patients the support they need in order to receive their treatment.
You can also help by joining the registry. Click one of the links below. A swab kit will be mailed to your home. Once you return that kit, your name will be included in searches for life-saving donors.
Join the registry in honor of Giliani:
join the registry
Join the registry in honor of Stephanie:
join the registry
Thanks for reading. We hope to see you at future celebrations.
Written by Bret Itskowitch