fbpx
Skip to main content
Icla da Silva MatchMaker 5K in NYC – Join Us on May 18th

Registration is open for the Icla da Silva MatchMaker 5K in NYC.

This is our 9th annual 5K Run/Walk in NYC. It will take place on Saturday, May 18, 2019.

All proceeds help us add more potential life-savers to the #BeTheMatch bone marrow registry. Donations also enable us to assist more patients in their battle against life-threatening diseases like leukemia, lymphoma and sickle cell.


This year, the run will take place in the beautiful 
Flushing Meadows Corona Park in the Northern part of Queens. The park has been home to two World’s Fairs and now the Icla da Silva MatchMaker 5k.

In the spirit of helping diverse communities in their fight with various blood cancers, register today and run or walk “around the globe” with us.

You can run by yourself, but you will never be alone.

The Icla da Silva Foundation has been recruiting bone marrow donors and supporting patients in need for 27 years.

Join a team, or start your own. Help us raise funds and have fun doing it.

register to walk/run

Early Bird registration is only $25, but it ends on March 18, so register today!

make a donation

See you on May 18th.

Share this:
A Season For Giving – Part 4 – A 2nd Chance At Life

HAPPY NEW YEAR!

Help us greet the new year with a 2nd chance at life!

With your financial contribution, you are supporting us in fulfilling our mission to save more lives…to give more patients that 2nd chance at life. Funds that we raise help us recruit potential bone marrow donors and add them to the Be The Match donor registry.

donate and make a difference

Please consider making a tax deductible donation to the Icla da Silva Foundation and help us host more drives, recruit more donors, and aid more families in need.

 

Specifically, we need to add more potential life savers who are ethnically diverse. All minority segments are under represented and those patients are much less likely to find a matching donor.

With your help we can change this unfortunate fact.

 

 

We need to recruit more people like Michael Powell, who registered through Icla da Silva in 2007. He received the call that he was a match, not once, but twice. He generously donated his stem cells in 2013, and then he gave his life saving bone marrow in 2017.

His bone marrow was successfully transplanted into Aunesti Sullivan, and she began her 2nd chance at life on June 2, 2017 at the age of 12. She is doing great and living the active life of a young teenager – thanks to Michael.

Please help us recruit more people like Michael and add more hope for the 14,000 patients who are in need each year. Even a small financial donation will help us give more patients like Aunesti a 2nd chance at life.

make a financial donation

If you missed part 1part 2, or part 3 of this 4 part series, you can read them by clicking the links.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you for your support!

Share this:
A Season For Giving – Part 3 – Keeping Hope Alive

KEEPING HOPE ALIVE!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

With donations from people like you, Icla da Silva is able to manage a small patient support program. The program provides aid to patients in need.

Our goal is to Keep the Hope Alive for as many patients as possible. Whether they are searching for a match, or working through treatment, we do our best to provide emotional, logistical, and as often as we can, financial support.

Our budget is small, but we are always available with a supportive ear and a kind word.  We help with logistics by making referrals regarding transplant centers, and recommendations for second opinions and clinical trials.  When we can afford it, we try to assist financially with HLA typing and sometimes, transportation, lodging or meals. This year, we were able to help more than 200 families.  Whether that was 2 nights at a Holiday Inn, or a gas card to get to a treatment center, we support the patients we work with as best we can.

We would love to be able to help more patients, but we can’t do it without you.  Please consider a donation and help us Keep Hope Alive.

make A donation

You may remember Ne’Mya Sullivan from last year.

Mya was blessed to receive a life-saving stem cell transplant from her brother. With so many weeks in the hospital, both before and after her transplant, Mya’s mom was forced to quit work; despite their growing list of bills and expenses. Thanks to people like you, we were fortunate enough to be able to assist the family with a small grant. We are grateful that we were able to Keep the Hope Alive because of donations from our supporters.

Thank you to amazing people who supported us through our journey and continue to check in. We love you all…thank you most to the Icla da Silva Foundation. You are all so amazing; more than supporters, more like family. Thank you for everything.” -Nekisha Banks Sullivan

One year post transplant and Ne’Mya is doing great. She is in the 5th grade and has joined the cheerleading team. She is grateful for a daily routine without meds, and the opportunity to enjoy her family without restriction. Go Mya!

A single donation can make such a profound impact on a patient’s family. Will you help us continue to Keep Hope Alive? We want every family to get the support that they need in the New Year.

Help us help them.

KEEP THE HOPE ALIVE

If you missed part 1, or part 2 of our 4 part series, you can read them by clicking the links.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

Share this:
A Season For Giving – Part 2 – The Gift of Hope

SEASONS GREETINGS!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

All throughout the year, the Icla da Silva Foundation strives to give more patients and their families the Gift of Hope.

During the Holiday Season, the Season for Giving, we ask for your help. The funds that are donated go towards adding more potential life savers to the Be The Match bone marrow registry.

make your donation

Too many patients are searching for a matching stem cell or bone marrow donor without success.

Veronica Depauli is one of those patients. Veronica is searching for her match.

She has a very rare disease called ADO II. It is a genetic disorder which causes increased bone density and abnormal bone growth. Without a matching donor, her condition can lead to facial paralysis, blindness and death. Veronica’s family has been searching for a bone marrow match for over two years, and we have been supporting them in their search.

Although her condition gets more complex with each day, Veronica continues to smile. Despite the many doctor visits, the tests, the pain…she smiles.

We are asking for your help. There is currently no match for Veronica on the registry.

Through financial support from people like you, we are able to host more drives and give more HOPE to the many patients in need of a match.

We want to save more lives. Over the past 7 years, we have helped more than 500 patients find their match. Your donation will help us add more potential life-savers to the registry. We are hopeful that one of them will be a match for Veronica.

give the gift of hope

Please consider a donation and help us continue to give the Gift of Hope.

If you missed part 1 of our 4 part series, you can read it here.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

Share this:
A Season For Giving – Part 1 – The Gift of Life

SEASONS GREETINGS!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

The Season represents a time for giving. For us, it’s about Giving the Gift of Life. We use the funds that we receive to add more potential donors to the Be the Match registry. We are hoping to find that perfect match, a Gift of Life for one of the many patients that we work with.

One of those patients is Asaya Bullock.

When Asaya was just 8 months old, he was diagnosed with a rare autoimmune disease called IPEX syndrome. A person with IPEX lacks the ability to regulate their immune system, they loose the capability to defend against disease. It can also cause the immune system to attack the body’s own tissues and organs.

Asaya often feels pain throughout his entire body. Although he is allowed to attend school, he misses many days due to treatments, or simply because he doesn’t feel up to it. Asaya and his family have been searching for a bone marrow donor for most of his life.

Asaya is African American and West Indian Caribbean. Unfortunately, his ethnicity is not well represented on the bone marrow registry. Only 23% of African American patients with a blood cancer are successful in finding a matching stem cell or bone marrow donor. By comparison, Caucasian patients with the same diagnoses, have a 77% chance of finding a matching donor.

There simply aren’t enough potential donors who have joined the registry. The Icla da Silva Foundation is trying to change this by adding more people to the registry who are ethnically diverse.

In the last 7 years, the time Asaya has been fighting his disease, we have added more than 200,000 potential donors to the registry. Unfortunately, there is still no match for Asaya.

We will continue until we find one.

By donating just $100 you can help defer the cost of adding one person to the bone marrow registry. With your help, we will find a life-saving donor for Asaya and many other patients like him Please donate and help us Give the Gift of Life to children like Asaya.

please donate today

You can read part 2 of our 4 part series here.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

Share this:
A Night to Remember with Jennifer Jones Austin: Together We Can Save More Lives

The Icla da Silva Foundation is proud to announce Jennifer Jones Austin as Master of Ceremonies at the 2018 Hope Gala.  The Gala event, taking place on October 17th in NYC is the largest fundraiser for Icla da Silva.

Jennifer Jones Austin, Esq.

Jennifer Jones Austin is a wife, mother, lawyer and family advocate.  She is CEO and Executive Director of the Federation of Protestant Welfare Agencies (FPWA), an anti-poverty, policy and advocacy organization with 170 member human services agencies operating throughout New York City. Prior to joining FPWA, Ms. Jones Austin served as Senior Vice President of United Way NYC, Family Services Coordinator for Mayor Bloomberg, Deputy Commissioner for the NYC Administration for Children’s Services, Civil Rights Deputy Bureau Chief for Attorney General Eliot Spitzer, and Vice President for LearnNow/Edison Schools Inc. She currently is a Board Member of the National Action Network, the New York Blood Center, the NYC Board of Correction, and the Fund for Public Housing.

Leukemia Survivor

She is also a leukemia survivor, and the author of Consider It Pure Joy.  The book is an account of her battle with leukemia, and her race against time in the search for a cure. Together with family and friends, Jennifer Jones Austin led a campaign that added more than 13,000 potential bone marrow donors to the registry.  Those donors added much needed hope for the many patients fighting this deadly disease.

The Icla da Silva Foundation assisted Jennifer Jones Austin during her search. We are grateful that she, and her husband Shawn Austin, who serves as Chairman on the Board of Trustees for the Icla da Silva Foundation, stand with us and continue their support of our mission.

Please join us for a night to remember.

The 2018 Hope Gala takes place on Wednesday evening, October 17th at 6:30 PM.  The dinner and dance is black tie optional and will be held at Guastavino’s, 409 east 59th Street in New York City.  

rsvp for a night to remember

Share this:
Join Us on October 17th and Help Save More Lives

 

The 2018 Hope Gala takes place on Wednesday, October 17th at 6:30 PM.  The dinner and dance is black tie optional and will be held at Guastavino’s, 409 east 59th Street in New York City.  The Hope Gala is the largest fundraising event for the Icla da Silva Foundation.

 

Why Are We Celebrating?

The Hope Gala celebrates our achievements and raises funds to continue our fight against leukemia and other diseases treatable by bone marrow transplants.

Thanks to your support, so far this year, the Icla da Silva Foundation has held 1374 donor recruitment drives across the country.  At those drives, we have added 20,246 potentially life-saving donors to the Be the Match bone marrow registry.  We aren’t finished yet.

Our focus is to increase awareness, and register more donors who are ethnically diverse.  Unfortunately, blood cancer patients who are ethnically diverse, have less than a 50% chance of finding a potential match.  We want to change that.

Why Should You Attend?

Your attendance and the resulting donations this year, will help us add greater diversity to the bone marrow registry. A portion of the funds raised, also go towards our Patient Support Services program.  The program helps patients and their families deal with some of the financial difficulties when presented with a life threatening blood cancer.

Icla da Silva uses it’s knowledge and experience to guide patient families with information, logistics, and emotional support.  With the funds raised last year, we have been able to help patients with transportation, lodging and meals related to their bone marrow transplant and treatment.  We have also assisted with HLA typing and medical expenses.

Will We See You This Year?

This years Hope Gala will include more than 300 influential guests from the worlds of business, healthcare, the arts, philanthropy, and academia. The evening promises to be an affair to remember. Please extend an invitation to your friends and associates.  Cocktails and a silent auction begin at 6:30PM.  Dinner and dancing start at 7:30 PM.

JOIN US IN OUR FIGHT TO HELP MORE PATIENTS 

please RSVP today

 

 

Share this:
The Fighter

Little Ricky Roman“Little” Ricky Roman isn’t so little anymore, he is now almost as tall as his dad, “Big” Ricky.  In February, Little Ricky turned 16, but the blood pulsing through his body is technically only seven years old.  In May, he celebrated his 7th transplant birthday, 7 years after receiving a stem cell transplant from an unknown donor.

In September 2010, Little Ricky wasn’t feeling well.  He was bruising easily and his eyes were a pale yellow.  His parents rushed him to the doctor. One month later, he was diagnosed with severe aplastic anemia, a rare and serious condition in which the bone marrow stops producing enough new blood cells.  It leaves you feeling weak and fatigued, with a higher risk of infections and potential heart complications.

Little Ricky was an active child, so his fatigue was an obvious sign that something was wrong.  He liked biking, baseball and boxing. After diagnosis, his obsession with boxing took on a new meaning.  While no one is prepared for a battle with cancer, Little Ricky became a true fighter.

The Search for a Match

It was determined by his doctors that a stem cell transplant was his only cure. At the time, there was no match on the Be The Match bone marrow registry.  Aunts, uncles and cousins were tested.  Unfortunately, no one was a match for Little Ricky.  With the support of his family, friends and the Icla da Silva Foundation, everyone was determined to find a match. We held bone marrow drives, getting as many people as possible to join the registry, and we all hoped that a life saving match would turn up.

Ricky spent a year going back and forth to the hospital, for treatments, tests and observation.  His mom had to quit her job so that she was always available for a quick trip to the hospital, an overnight stay, or weeks of treatments.

Finally, A Match Was Found

Little Ricky Roman, the fighter, received a successful transplant in May of 2011 at NY Presbyterian Hospital.  

Someone who had joined the Be The Match registry was a match for Ricky.  Fortunately, they said yes to a stem cell donation. Ricky has yet to meet the donor who joined the registry.  He knows that it is a woman, and he is grateful that she said yes when she received the call asking her to donate.  We hope to be able to arrange a meeting between Little Ricky and his donor.

Annual Ricky Roman Fundraiser

Since the time of his diagnosis, the Roman family has been very supportive of the Icla da Silva Foundation.  They are avid sports fans; they ran together in our annual 5K, and for the past 8 years, the Roman’s have been hosting a Softball Fundraiser to support the Icla da Silva Foundation.  We are extremely grateful for their efforts. The money they raise helps us continue fighting for patients who need a bone marrow transplant. You can click this link to find out more information about the Ricky Roman Softball Fundraiser and register a team. 

Lil Ricky Roman Softball Fundraiser

 

If you are in or near Jersey City, join them on the field:

Saturday August 4

9:00 AM

Caven Point Softball Fields, Jersey City, NJ

 

It’s easy to enter a team, or simply support their efforts through a donation.

We are very grateful and we appreciate their continued support of our efforts.  We know many patients are thankful as well (click below to support the fundraiser).Ricky Roman Softball Fundraiser

Keep Fighting Ricky

According to his Aunt Maria, Ricky is doing well.  He starts High School in the fall. He loves baseball, bikes, and playing video games.  Of course all children love playing video games, often to the exasperation of many adults, but this is a special circumstance.  Spending a year in and out of the hospital for treatments gives ‘playing video games’ a new understanding.

Keep fighting Ricky, keep playing, keep growing, and thank you to you and your family for continuing to raise funds for us.

 

Share this: