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Join Us for the Icla da Silva 2019 Hope Gala

 

BREAKING NEWS: On October 16th, 2019, the Icla da Silva Foundation will hold its 27th annual Hope Gala celebration. The event promises to be an extraordinary evening of dining and dancing while raising funds to support our mission.

Held annually, the Hope Gala celebrates the Foundation’s achievements for the year in fighting leukemia and other diseases treatable by bone marrow transplants. The evening’s highlight is an emotional first-time meeting between a former patient and their life-saving bone marrow donor.

Details

Please join us, rsvp here:

RSVP for the Hope gala

Honoring

This year, the Hope Gala is honoring Dr. Lawrence Itskowitch.  As a founding board member, Dr. Itskowitch has been with the Foundation since day one. He will share some of his experiences working with the foundation at its onset, and meeting Icla prior to her death from leukemia in 1992.

Grateful

The Icla da Silva Foundation is extremely grateful to the Hope Gala Host Committee and Co-Chairs, Mrs. Tanae & Mr. Claudio Braz Ferro, and Mrs. Renata & Mr. Claudio Garcia.

Their gracious support enables us to move forward in our mission of both saving lives by recruiting bone marrow donors and providing support services to children and adults with leukemia and other diseases treatable by marrow transplants.

Join Us

We hope to see you on October 16th. RSVP today! Together we will save more lives.

 

About Icla da Silva
The Icla da Silva Foundation is the largest recruitment center for the Be The Match Registry in the United States. The Foundation recruits over 38,000 potential bone marrow donors every year, with a strong focus on minority communities.

The Icla da Silva Foundation was established in 1992, in memory of the 13-year-old Brazilian girl named Icla da Silva. After two years of fighting leukemia, Icla passed away in New York City, where she came hoping to get her life-saving treatment: a bone marrow transplant. The young girl never found a matching donor.

The mission of the Icla da Silva Foundation is to save lives by recruiting bone marrow donors and to provide support services to children and adults with leukemia and other diseases treatable by marrow transplants. The Icla da Silva Foundation is a nonprofit organization under section 501(c) 3 of the IRS Code.
www.icla.org

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Thank You!

 

Your donations will help us add more potential life-savers to the Be The Match registry this year.

Even if you were unable to make a financial donation, we wanted to thank you for your continued support.

Every dollar, like, share and mention brings us closer to our goal of saving more lives that are treatable with bone marrow transplants.

You are appreciated.

MAKE A DONATION

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

JOIN THE REGISTRY

Wishing you and your family a healthy and happy New Year!

 

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A Season For Giving – Part 4 – A 2nd Chance At Life

HAPPY NEW YEAR!

Help us greet the new year with a 2nd chance at life!

With your financial contribution, you are supporting us in fulfilling our mission to save more lives…to give more patients that 2nd chance at life. Funds that we raise help us recruit potential bone marrow donors and add them to the Be The Match donor registry.

donate and make a difference

Please consider making a tax deductible donation to the Icla da Silva Foundation and help us host more drives, recruit more donors, and aid more families in need.

 

Specifically, we need to add more potential life savers who are ethnically diverse. All minority segments are under represented and those patients are much less likely to find a matching donor.

With your help we can change this unfortunate fact.

 

 

We need to recruit more people like Michael Powell, who registered through Icla da Silva in 2007. He received the call that he was a match, not once, but twice. He generously donated his stem cells in 2013, and then he gave his life saving bone marrow in 2017.

His bone marrow was successfully transplanted into Aunesti Sullivan, and she began her 2nd chance at life on June 2, 2017 at the age of 12. She is doing great and living the active life of a young teenager – thanks to Michael.

Please help us recruit more people like Michael and add more hope for the 14,000 patients who are in need each year. Even a small financial donation will help us give more patients like Aunesti a 2nd chance at life.

make a financial donation

If you missed part 1part 2, or part 3 of this 4 part series, you can read them by clicking the links.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you for your support!

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A Season For Giving – Part 3 – Keeping Hope Alive

KEEPING HOPE ALIVE!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

With donations from people like you, Icla da Silva is able to manage a small patient support program. The program provides aid to patients in need.

Our goal is to Keep the Hope Alive for as many patients as possible. Whether they are searching for a match, or working through treatment, we do our best to provide emotional, logistical, and as often as we can, financial support.

Our budget is small, but we are always available with a supportive ear and a kind word.  We help with logistics by making referrals regarding transplant centers, and recommendations for second opinions and clinical trials.  When we can afford it, we try to assist financially with HLA typing and sometimes, transportation, lodging or meals. This year, we were able to help more than 200 families.  Whether that was 2 nights at a Holiday Inn, or a gas card to get to a treatment center, we support the patients we work with as best we can.

We would love to be able to help more patients, but we can’t do it without you.  Please consider a donation and help us Keep Hope Alive.

make A donation

You may remember Ne’Mya Sullivan from last year.

Mya was blessed to receive a life-saving stem cell transplant from her brother. With so many weeks in the hospital, both before and after her transplant, Mya’s mom was forced to quit work; despite their growing list of bills and expenses. Thanks to people like you, we were fortunate enough to be able to assist the family with a small grant. We are grateful that we were able to Keep the Hope Alive because of donations from our supporters.

Thank you to amazing people who supported us through our journey and continue to check in. We love you all…thank you most to the Icla da Silva Foundation. You are all so amazing; more than supporters, more like family. Thank you for everything.” -Nekisha Banks Sullivan

One year post transplant and Ne’Mya is doing great. She is in the 5th grade and has joined the cheerleading team. She is grateful for a daily routine without meds, and the opportunity to enjoy her family without restriction. Go Mya!

A single donation can make such a profound impact on a patient’s family. Will you help us continue to Keep Hope Alive? We want every family to get the support that they need in the New Year.

Help us help them.

KEEP THE HOPE ALIVE

If you missed part 1, or part 2 of our 4 part series, you can read them by clicking the links.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

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A Season For Giving – Part 2 – The Gift of Hope

SEASONS GREETINGS!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

All throughout the year, the Icla da Silva Foundation strives to give more patients and their families the Gift of Hope.

During the Holiday Season, the Season for Giving, we ask for your help. The funds that are donated go towards adding more potential life savers to the Be The Match bone marrow registry.

make your donation

Too many patients are searching for a matching stem cell or bone marrow donor without success.

Veronica Depauli is one of those patients. Veronica is searching for her match.

She has a very rare disease called ADO II. It is a genetic disorder which causes increased bone density and abnormal bone growth. Without a matching donor, her condition can lead to facial paralysis, blindness and death. Veronica’s family has been searching for a bone marrow match for over two years, and we have been supporting them in their search.

Although her condition gets more complex with each day, Veronica continues to smile. Despite the many doctor visits, the tests, the pain…she smiles.

We are asking for your help. There is currently no match for Veronica on the registry.

Through financial support from people like you, we are able to host more drives and give more HOPE to the many patients in need of a match.

We want to save more lives. Over the past 7 years, we have helped more than 500 patients find their match. Your donation will help us add more potential life-savers to the registry. We are hopeful that one of them will be a match for Veronica.

give the gift of hope

Please consider a donation and help us continue to give the Gift of Hope.

If you missed part 1 of our 4 part series, you can read it here.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

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A Season For Giving – Part 1 – The Gift of Life

SEASONS GREETINGS!

This Holiday season we are sharing four inspiring stories from our patients and friends. We hope that these stories move you and incite you to make a donation.

The Season represents a time for giving. For us, it’s about Giving the Gift of Life. We use the funds that we receive to add more potential donors to the Be the Match registry. We are hoping to find that perfect match, a Gift of Life for one of the many patients that we work with.

One of those patients is Asaya Bullock.

When Asaya was just 8 months old, he was diagnosed with a rare autoimmune disease called IPEX syndrome. A person with IPEX lacks the ability to regulate their immune system, they loose the capability to defend against disease. It can also cause the immune system to attack the body’s own tissues and organs.

Asaya often feels pain throughout his entire body. Although he is allowed to attend school, he misses many days due to treatments, or simply because he doesn’t feel up to it. Asaya and his family have been searching for a bone marrow donor for most of his life.

Asaya is African American and West Indian Caribbean. Unfortunately, his ethnicity is not well represented on the bone marrow registry. Only 23% of African American patients with a blood cancer are successful in finding a matching stem cell or bone marrow donor. By comparison, Caucasian patients with the same diagnoses, have a 77% chance of finding a matching donor.

There simply aren’t enough potential donors who have joined the registry. The Icla da Silva Foundation is trying to change this by adding more people to the registry who are ethnically diverse.

In the last 7 years, the time Asaya has been fighting his disease, we have added more than 200,000 potential donors to the registry. Unfortunately, there is still no match for Asaya.

We will continue until we find one.

By donating just $100 you can help defer the cost of adding one person to the bone marrow registry. With your help, we will find a life-saving donor for Asaya and many other patients like him Please donate and help us Give the Gift of Life to children like Asaya.

please donate today

You can read part 2 of our 4 part series here.

Icla da Silva is a 501(c)3 organization and your donation is tax deductible.

Thank you.

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#Giving Tuesday – Every Contribution Gives Hope

The Icla Da Silva Foundation has been helping patients with blood cancers, and adding potential donors to the bone marrow registry, for 26 years. We started in memory of my sister Icla, who was unable to find the match that she needed to survive.

In her honor, every year the Icla Da Silva Foundation adds 38,000 new members to the registry.  Potential life savers, with a strong focus on communities from diverse ethnic backgrounds.

When a family learns that a loved one has been diagnosed with a rare disease or blood cancer, and is in need of a bone marrow transplant, the fear can be horribly daunting. Our goal is to offer these patients and their families hope for a second chance, hope for a life-saving stem cell or bone marrow match.

One of our patients, Julian Morales, has been searching for his match since he was three years old. Now seven, Julian smiles when he speaks about the day he will finally be able to go to a water park with his family, or play outside with his sister, or simply enjoy a single nights rest without pain or discomfort.

Julian was born with a rare genetic disorder, Dyskeratosis Congenita (DKC). His bone marrow does not produce enough blood cells, and his immune system is severely compromised. The team at Icla has been working to find a bone marrow match for Julian by hosting drives in diverse communities.

Patients with Hispanic or Latino heritage only have a 46% percent chance of finding a matching donor on the registry. Those with mixed ethnicities have an even lower probability of finding their match. Julian is of Honduran and Guatemalan descent, and his need for a life saving match grows with every day. With the support of people like you, we continue the search for his match.

There are many deserving and inspiring Foundations to support on this #Giving Tuesday.  This year we hope you think of the Icla da Silva Foundation, of Julian Morales, and of the thousands of children in need of their perfect match. Contributions like yours give hope to the patients, their families, and the many friends in their community.

Thank you for your generosity.

Thank you for being a part of our family.

Airam Da Silva

please donate

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The Summertime Swab Challenge

 

Throughout the month of July, the Icla da Silva Foundation is running the Summertime Swab Challenge.  Enter a guess – how many swabs did we fit in the jar?  The person with the closest guess to the actual number of swabs will get to choose one of two fantastic prizes, valued at over $500.  While you enjoy the warmer days and bigger smiles associated with summer, we hope you will take a chance and enter a guess to help a patient in need.

The Swabs

Swabs are a big part of what we do.  When you join the Be The Match bone marrow registry, you receive a swab kit in the mail.  After you have swabbed the inside of your cheek, you send it back to Be The Match so that your HLA type can be tested, registered, and included in patient searches.  Hopefully you will be matched to one of the 14,000 patients who need a transplant to survive. Swabs are about registering yourself to become a life saver.

During the month of July, we are using swabs to increase awareness and raise funds so that we can continue to save more lives.

The Swab Jar

Summer Swab Challenge

Summertime Swab Challenge

We have filled a 2.5 gallon glass jar with q-tip sized swabs and closed the lid.  Underneath the jar is an envelope that details the # of swabs included in the jar.  On August 1, 2018, we will open the envelope on social media and reveal the # of swabs. Will you be a winner?

 

 

 


A Small Donation

From July 1st through July 31st, you will have the chance to make a small donation* and enter your guess as to how many swabs we have fit into the jar.  All donations will go towards our Patient Support Services program. Based on need, we try to assist patient families with expenses associated with bone marrow testing and treatments.   Items like HLA typing, medical co-pays, transportation, and housing can become overbearing when a patent, or their family, don’t have the savings available to manage all of the costs associated with an extensive treatment plan.

Donate and guess as often as you like.  Share your guess with your social network.  Every donation will help a patient in need, sharing on facebook will help increase awareness about how easy it is to become a life saver, and entering will earn you a chance to win a fantastic prize.

Please enter here:  Summertime swab challenge

* no donation necessary, see official rules for alternative entry.

Prize Options

The person who provides the most accurate guess as to the actual # of swabs in the jar will will have their choice between one of two fantastic prize options, A or B:

Option A:  If your guess is the closest, you could choose (2) tickets to the 2018 Annual Hope Gala event in New York City.  The Gala is our black tie (optional) dinner and dance where we celebrate our recent achievements and showcase a first time meeting between a transplant patient and their bone marrow donor.

You will enjoy great company, good food and dance the night away.  You will laugh, you will cry, and you will help us celebrate the patients who we support and the lives that we save.

The Hope Gala event takes place on October 17, 2018 at Gustavino’s, 409 East 59th Street, New York, NY from 6:30PM until 9:30PM.  Transportation, accommodations and other costs associated with attending this event are not included with this prize award.  Total retail value is $900.

-Or-

Option B:  As an alternative, you may choose a $500 gift certificate to the Brazilian steakhouse, Fogo de Chao. The restaurant is inspired by the grand kitchen tables on the farms in Southern Brazil, where family and friends gather to share the finest and the freshest from their harvest.

Fogo de Chao has 39 locations throughout the U.S. and Puerto Rico and the gift certificate is available to use at a location of your choice until August 1, 2020.

Enter Here:

Summertime swab challenge

The Reveal

On August 1, 2018, on social media, we will open the envelope that reveals the # of swabs in the jar.  Will you be the winner?  Enter a guess and you may have your choice between one of 2 great prizes.  Please share our sweepstakes promotion on facebook and ask your friends to enter their guess.

Enjoy the summer!

Official Rules

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The Fighter

Little Ricky Roman“Little” Ricky Roman isn’t so little anymore, he is now almost as tall as his dad, “Big” Ricky.  In February, Little Ricky turned 16, but the blood pulsing through his body is technically only seven years old.  In May, he celebrated his 7th transplant birthday, 7 years after receiving a stem cell transplant from an unknown donor.

In September 2010, Little Ricky wasn’t feeling well.  He was bruising easily and his eyes were a pale yellow.  His parents rushed him to the doctor. One month later, he was diagnosed with severe aplastic anemia, a rare and serious condition in which the bone marrow stops producing enough new blood cells.  It leaves you feeling weak and fatigued, with a higher risk of infections and potential heart complications.

Little Ricky was an active child, so his fatigue was an obvious sign that something was wrong.  He liked biking, baseball and boxing. After diagnosis, his obsession with boxing took on a new meaning.  While no one is prepared for a battle with cancer, Little Ricky became a true fighter.

The Search for a Match

It was determined by his doctors that a stem cell transplant was his only cure. At the time, there was no match on the Be The Match bone marrow registry.  Aunts, uncles and cousins were tested.  Unfortunately, no one was a match for Little Ricky.  With the support of his family, friends and the Icla da Silva Foundation, everyone was determined to find a match. We held bone marrow drives, getting as many people as possible to join the registry, and we all hoped that a life saving match would turn up.

Ricky spent a year going back and forth to the hospital, for treatments, tests and observation.  His mom had to quit her job so that she was always available for a quick trip to the hospital, an overnight stay, or weeks of treatments.

Finally, A Match Was Found

Little Ricky Roman, the fighter, received a successful transplant in May of 2011 at NY Presbyterian Hospital.  

Someone who had joined the Be The Match registry was a match for Ricky.  Fortunately, they said yes to a stem cell donation. Ricky has yet to meet the donor who joined the registry.  He knows that it is a woman, and he is grateful that she said yes when she received the call asking her to donate.  We hope to be able to arrange a meeting between Little Ricky and his donor.

Annual Ricky Roman Fundraiser

Since the time of his diagnosis, the Roman family has been very supportive of the Icla da Silva Foundation.  They are avid sports fans; they ran together in our annual 5K, and for the past 8 years, the Roman’s have been hosting a Softball Fundraiser to support the Icla da Silva Foundation.  We are extremely grateful for their efforts. The money they raise helps us continue fighting for patients who need a bone marrow transplant. You can click this link to find out more information about the Ricky Roman Softball Fundraiser and register a team. 

Lil Ricky Roman Softball Fundraiser

 

If you are in or near Jersey City, join them on the field:

Saturday August 4

9:00 AM

Caven Point Softball Fields, Jersey City, NJ

 

It’s easy to enter a team, or simply support their efforts through a donation.

We are very grateful and we appreciate their continued support of our efforts.  We know many patients are thankful as well (click below to support the fundraiser).Ricky Roman Softball Fundraiser

Keep Fighting Ricky

According to his Aunt Maria, Ricky is doing well.  He starts High School in the fall. He loves baseball, bikes, and playing video games.  Of course all children love playing video games, often to the exasperation of many adults, but this is a special circumstance.  Spending a year in and out of the hospital for treatments gives ‘playing video games’ a new understanding.

Keep fighting Ricky, keep playing, keep growing, and thank you to you and your family for continuing to raise funds for us.

 

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PATIENT UPDATE: Mission of Joy – Creating Superheroes

In early July of 2017, Aashim Joy was diagnosed with ALL (B-Cell Type Acute Lymphoblastic Leukemia). His only hope for a cure is a matching bone marrow transplant, and we first reported his story here.

Aashim is currently in remission, which is good news, at least temporarily.  For leukemia patients undergoing chemotherapy, remission means that there is ‘less’ cancer in the body.  Unfortunately, the chance of a relapse, or a recurrence of cancer, remains high and it is important that they maintain their treatments, and continue their search for a matching bone marrow donor.

Aashim Joy lives up to his name, literally.  He is in good spirits, always positive and usually ‘joyful’.  He is very focused on spreading the word about joining the registry and supporting patient services.

Spreading Awareness / Creating Superheroes

Recently, he attended and spoke at our 5K in NYC, he also talked about his journey at our Mix & Match event last month.  If you attended either event, you heard Aashim speak about becoming a superhero. He is on a mission, he wants to create superheroes.  He is devoted to educating as many people as possible about the importance of registering to become a bone marrow donor, and staying committed if you are identified as a match for someone.  He wants everyone to understand how meaningful it is to save a life and thus, how easy it is to become a superhero. 

Working with bone marrow patients for the last 25 years, we know he is right.  We understand that reaching out to friends and posting on social media does not generate the numbers necessary to save the many lives who are in need of a matching donor.  Try as we may, enough people don’t understand how simple the process of registering is. They fail to recognize that the vast majority of bone marrow donations are neither painful, nor invasive. As Aashim says – “There are a lot of misconceptions associated with bone marrow transplant, and most folks don’t really feel it’s worth the effort to wake up on a Sunday morning and register as a donor.”

Aashim, along with his beautiful and intelligent wife Reema, stand behind this mission, to raise awareness and increase support.  From their apartment in NYC, Aashim and his wife have spearheaded many bone marrow drives throughout India.  His friends at Deloitte put together a fundraising team and participated as ‘Run For Joy’ in the MatchMaker 5K.  Aashim even donated his birthday to the Icla da Silva Foundation, helping our efforts to provide more patient support services to those in need.

Supporting and Fundraising

Aashim donated his birthday by setting up a simple donation page. He went to www.icla.org/get-involved and clicked on “Fundraise with Us.” From this link, he easily developed an online fundraising page.  Aashim wrote a short paragraph about his experience, and then posted the link to his Facebook page, inviting his friends and followers to get involved. The fundraiser lasted until his birthday, and raised 120% of the goal! Thank you to Aashim and all his friends and family for taking this extra step to ensure that more patients who need a bone marrow transplant can find a match. You are all superheroes and you are all saving lives!

It’s so easy to start a fundraiser for the Icla da Silva Foundation.  Follow the same steps as Aashim, customize your fundraising page, and share with your friends and family. It doesn’t have to be your birthday to get involved.  Whether you’re running a marathon, remembering a loved one, or celebrating an anniversary, any time is a good time to be a superhero and help save lives.

You can be a Superhero!

Everyone between the ages of 18-44 can be a superhero.  Start by joining the registry in honor of Aashim https://join.bethematch.org/gettestedforjoy. If you want to make a donation to Aashim’s birthday fundraiser, you can still do so here.

Thank you to Aashim, and his wife Reema, for your continued efforts to spread awareness about blood cancers and the power of joining the Be The Match registry; saving a life can make anyone a superhero.

 

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