May 27, 2023 | Lead News, Patient Stories, Survivor Stories
Twins with Sickle Cell Receive Their 2nd Bone Marrow Transplant
REMOVING BARRIERS – AARON & RYAN’S STORY
(Updated: May 27, 2023)
Palm Beach Country, Florida
When we first learned about Marelyn and her two boys, they needed financial assistance. The twins, Aaron and Ryan, were both diagnosed with sickle cell disease and scheduled to receive a bone marrow transplant.
This is what we do.
The Icla da Silva Foundation supports patients on their journey to receive a bone marrow or cord blood transplant. For patients demonstrating financial need, we provide grants during treatment.
But when we met, we discovered that this was their second transplant. The boys had already received a stem cell transplant from their mom last year. Due to complications, they needed another one.
It Was a Difficult Situation
As a single mom, Marelyn has been unable to work while acting as the caregiver for two 8-year-old boys with a blood disease. She has been without income for an extended period.
She was in a very difficult situation.
Marelyn was alone, afraid, and unsure of the outcome. With sickle cell disease, the boys have lived in pain for years. They had already been through treatment and transplant, and now they needed to do it all over again.
Watch Mom try to explain some of her challenges. It’s a very hard thing to ask for help.
We were happy to provide the family with a grant while the twins were in treatment. We helped with housing, transportation, and support for meals. But, Marelyn needed more.
She needed emotional support, someone to talk with who could understand her challenges. She needed a shoulder to lean on.
We have been speaking with Marelyn 2-3 times a week in the months before the boys’ second transplant. Days, evenings, and weekends; it didn’t matter. We wanted to help her get through this ordeal and understand that she is not alone.
At the very least, we wanted to provide her with hope.
The 2nd Bone Marrow Transplant Was a Success
The boys have received their second bone marrow transplant. Once again, their mom was the donor.
UPDATE: The boys are doing well and we received a quick update from their mother…look at them now!
We want Marelyn to have high hopes for their future.
Thanks for reading. You can support more patient families like Marelyn, Aaron, and Ryan with a donation. Even the smallest gift can make a huge impact on life during treatment.
Together, we will continue to make a difference for patients in need of a bone marrow transplant.
Written by: Bret Itskowitch